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dc.contributor.authorFontes, Eva M. Aes_ES
dc.contributor.authorAmorim, Luizes_ES
dc.contributor.authorCarvalho, Silvia Mes_ES
dc.contributor.authorFarah, Miguel Bes_ES
dc.date.accessioned2015-08-25T14:53:23Z
dc.date.available2015-08-25T14:53:23Z
dc.date.issued2003es_ES
dc.identifier.citationFontes, Eva M. A,Amorim, Luiz,Carvalho, Silvia M,Farah, Miguel B (2003) Hemophilia care in the state of Rio de Janeiro, Brazil. Rev Panam Salud Publica;13(2/3) 124-128,feb.-mar. 2003. Retrieved from http://www.scielosp.org/pdf/rpsp/v13n2-3/15727.pdfen_US
dc.identifier.urihttp://www.scielosp.org/pdf/rpsp/v13n2-3/15727.pdfes_ES
dc.identifier.urihttps://iris.paho.org/handle/10665.2/8403
dc.format.extenttabes_ES
dc.relation.ispartofseriesRev Panam Salud Publica;13(2/3),feb.-mar. 2003es_ES
dc.subjectGerenciamento Clínicoes_ES
dc.subjectHemofilia Aes_ES
dc.subjectRegionalizaçãopt_BR
dc.subjectBancos de Sanguees_ES
dc.subjectBrasilpt_BR
dc.subjectÁrea Programática (Saúde)es_ES
dc.subjectCriopreservaçãopt_BR
dc.subjectHemofilia Aes_ES
dc.titleHemophilia care in the state of Rio de Janeiro, Brazilen_US
dc.typeJournal articlesen_US
dc.rights.holderPan American Health Organizationen_US
dc.description.notesIn the developing countries of the world, few people with hemophilia receive adequate care. Nevertheless, Brazil has made significant advances in the treatment of hemophilia over the last decade. The provision of factor concentrates imported by the Government of Brazil is gradually increasing, and patients receive the concentrates for free. A national register was established as well as a coordinated program for comprehensive care. Of the 6 297 persons with hemophilia in Brazil who were registered as of January 2001, 689 of them (11.1 percent) were registered in the state of Rio de Janeiro. Of those 689, 664 of them were being monitored at the state's coordinating blood transfusion center, which is located in the city of Rio de Janeiro. Among those 664, factor VIII inhibitors were identified in 81 of them (12.2 percent). Among 653 of the Rio de Janeiro patients who were tested for transfusion-transmitted diseases, the overall prevalence found was 41.5 percent, with the specific rates being 13.3 percent for human immunodeficiency virus (HIV), 2.9 percent for hepatitis B virus (HBV), and 39.4 percent for hepatitis C virus (HCV). The state of Rio de Janeiro has adopted a comprehensive hemophilia management approach that includes medical, psychological, and social care. As a result, the quality of life of hemophilia patients has improved noticeably. For example, the rate of hospitalization among patients fell by 30 percent between 1998 and 2001, and there has also been a decline in the school and work activities that they have missed (AU)en_US


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